The Carcinoid Cancer Foundation has an excellent section specifically for newly diagnosed patients. CCF also maintains a database of NETs specialists around the country, organized by state.
The NETs Patient Foundation in the United Kingdom offers a free, downloadable NETs Handbook.
The Healing NET Foundation offers a free, downloadable NET Primer for healthcare professionals.
The Los Angeles Carcinoid and Neuroendocrine Tumor Society maintains a You Tube channel with more than 80 informative videos on various topics related to NETs. Access the channel by clicking on “Support,” then “Resources” on the LACNETS home page.