When Emily Zuckerberg’s husband was diagnosed with Carcinoid cancer, she discovered there were no Carcinoid or Neuroendocrine Tumor (NETs) support groups in New York City. So she started one of her own, along with fellow NET patients Beth Ripston and Nancy Stone. The group took the name Big Apple Neuroendocrine Tumor Support group, or Big Apple NETS.
Big Apple NETS is an informal, friendly group who have been meeting since 2013. Each member is at a different phase of their NET journey, from recently diagnosed to living with NETs for many years. We share our experiences, questions, concerns and information. Many of us have found that sharing our experiences has enhanced our understanding of our diagnosis and treatment options, and helped us improve the quality of our lives.
The support group started by meeting on the last Sunday of each month in a private apartment on the upper east side of Manhattan. Meetings were and continue to be free. All NET patients, caregivers, family and friends in the greater New York metropolitan area are welcome. Beginning in September, 2018, we will be co-hosting the meetings on the third Thursday of each month in partnership with Mount Sinai Hospital. The hospital’s Center for Carcinoid and Neuroendocrine Tumors, now under the leadership of Dr. Edward Wolin, has generously offered to support our efforts with NETs patients by providing meeting space at Mount Sinai on a monthly basis. We are very grateful!
Big Apple NETS also co-hosts a very popular series of Luncheons with the Experts where patients and caregivers have the opportunity to meet with knowledgeable and experienced NETs professionals in an informal setting. Over time, we look forward to expanding our activities and expanding the information available on this website in response to the needs of the local community.
Check our Calendar of Upcoming Events for the most current event dates, times, and location.