Medication Financial Assistance
Novartis Pharmaceuticals Corporation, Sandostatin LAR – Sandostatin LAR Co-Pay Card
Novartis Pharmaceuticals Corporation, Afinitor – Afinitor Co-Pay Card , select Advanced PNET
Ipsen Pharma S.A.S., Somatuline – Somatuline Depot Co-Pay Card
Lexicon Pharmaceuticals, Xermelo – LexCares
The Carcinoid Cancer Foundation – A comprehensive resource and a good place to begin for the newly diagnosed.
Caring for Carcinoid Foundation – The website of this organization, which is dedicated to discovering cures for NETs, is chock full of helpful information.
The Neuroendocrine Carcinoid Cancer Awareness Network – The website of a very active group which sponsors conferences and fund-raising events.
NET Patients Sharing Knowledge – “This is a secular discussion group where NET patients and their caregivers of all faiths or no faith are welcome. We are not a conventional support group. Our focus is the scientific aspects of treatment. We are here to share our knowledge and experiences, to help newly diagnosed patients understand more about their disease and to share how we live with NETs.”
The Carcinoid Cancer Online Support Group – an unmoderated forum for patients, caregivers, researchers, and physicians to discuss the clinical and nonclinical aspects of carcinoid neuroendocrine cancer.
Lovable Lungnoids on Facebook – online support for those affected by bronchial and pulmonary NETs.
Carcinoid Cafe on Facebook – online support for those affected by NETs.
The Carcinoid NETs Mobile App is a new free tool for carcinoid/NETs patients and their caregivers to keep track of all aspects of patient health. It is available for both IOS and Android.
NANETS 2015 Neuroendocrine Tumor Symposium Abstracts – October 18, 2015
OncLive Panel Discussion on Pancreatic Neuroendocrine Tumors – July 28, 2015 – 4 videos
LACNETS & Caring For Carcinoid Foundation 2015 Neuroendocrine Tumor Patient & Caregiver Educational Conference – Cedars-Sinai Medical, Los Angeles, June 27, 2015 – 16 videos
Society of Nuclear Medicine and Molecular Imaging Third Theranostic World Congress, Patient Edition – John Hopkins University, March 12-14, 2015 – 18 videos
Caring For Carcinoid Foundation & Stanford 2015 NET Conference – Stanford Medical, March 1, 2015 – 8 videos
New Jersey Carcinoid Cancer NETwork Conference, November 2, 2013 – the videos from this conference are located on the Carcinoid Cancer Foundation website.
Carcinoid NET Conference, NJCCN 2011, Dr. Rodney Pommier, “Surgery for Neuroendocrine Tumors”– highly informative on the topic of surgical resection of all types of carcinoid tumors. Note that the slides are quite graphic.
Carcinoid Cancer Foundation Presents ABC’s of Carcinoid and NETs – a short primer for “beginners”.
Zebra Talk: Navigating the World of Neuroendocrine Tumors – A Handbook for the Newly Diagnosed and Their Primary Care Physicians, edited by Suzi Garber, who states that the handbook “is intended as a reference for those newly diagnosed with NETs (neuroendocrine tumors), in the process, or hoping to explore this bewildering world. It is also a guide to resources that can empower patients through knowledge and the mentorship of others to make informed decisions for medical care.”
Beth’s Adventures with Carcinoid – the journey of a mid-gut carcinoid patient told with wit and lots of interesting information.
Ronny Allan-Living with Neuroendocrine Cancer – A decidedly active and not passive British NET patient on a mission for NET awareness.
Lucysnoidblog – this knowledgeable mid-gut carcinoid patient was diagnosed in 2006 and has been blogging about it since 2008.