November, 2018. Recently the Big Apple NETS Support Group lost two of its three original organizers within weeks of each other, to complications of their Neuroendocrine tumors; Beth Ripston and Nancy Stone.
Beth was diagnosed in 2010 and Nancy in 2011. Both followed the same path to learn about their disease and to find out what support systems were available to NETS patients in the New York City area. Both discovered there was very little in the way of local NET support groups that provided the contact they wanted with other NETS patients and caregivers in a casual and approachable environment.
Together with Emily Zuckerberg, a NETS patient caregiver, the three formed the Big Apple NETS Support Group in 2013. The purpose of the group was to meet once a month, and share experiences, questions, concerns and information among its members.
The Big Apple NETS Support Group honors the memory of it’s two former organizers. We hope their dedication and commitment to improving and enriching the lives of other Support Group members makes each patient’s and caregiver’s journey just a little bit easier.